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The clinical cancer registry at CIO has been established with the aim to improve the treatment of cancer patients and fulfils a central as part of CIO’s overall oncological quality management. Clinicians and data management teams at the Köln and Bonn campus work closely together to document in full all tumour patients diagnosed and treated at CIO.

This is achieved by recording the precise diagnosis, date of disease onset, surgical interventions (operations), chemotherapy, irradiation and all other therapeutic interventions. In addition, as part of the therapy ‘follow-up’ process, changes in disease progression such as relapses, are also documented.

Thus, the obtained data enables the:

• comparisons of different therapy modalities to monitor treatment success and survival,
• setting up of reminder strategies for defined and timed after care services, and
• comparisons with other clinical centres of excellence and hospitals (Benchmarking)

Furthermore, the clinical cancer registry supports CIO partners in the compliance of certification requirements, e.g. those of the German Cancer Society (Deutsche Krebsgesellschaft) for organ centres and expert appraisal.

Staff of the CIO clinical cancer register report basic clinical data to the regional population-based cancer registry of the State North Rhine Westphalia (NRW), which in turn forwards the data to the Robert-Koch Institute. Epidemiological cancer registries, such as the NRW institution, document and monitor the occurrence of specific tumour entities in a geographical region with the aim to establish and remove the causes. The Robert-Koch Institute on the other hand, analyses all data on a national level and publishes the findings in the Series Federal Health Reporting (Gesundheitsberichterstattung des Bundes).